Wednesday, July 29, 2015

If I could...

We all do it. Think of the what ifs... If I could go back in time...

Ironically as time passes I experience this less and less however sometimes like now, my mind still tries.

This blog post is most likely just me clearing my head. My counselling session got cancelled today and I think I was due for a talk so I'm coming here instead.

I was thinking this morning: If I could go back in time what would I change?

A long time ago I gave up wanting to go back and change my past addiction. I do regret that a lot of people got hurt along the way however that journey is now dear to me. A journey I will never let myself forget and has shaped me into who I am today. I'm proud of me and I'm ok with me, all my faults and good. I still get embarrassed to easily and I'm still self-conscious etc. but I have never been as sure of myself or as self-confident as I am today. I'm learning my limits and I'm ok with them.

The current what ifs start in 2011 when my son was diagnosed with paranoid schizophrenia. If I could go back in time and make it so that he didn't develop schizophrenia. Better yet how about his ADHD. You know, I wouldn't. I was slightly bemused at my thoughts on this until I thought it through a little more. ADHD and schizophrenia and even addiction are part of who my son is. Just like ADHD is a part of who my hubby is. Menopause is a part of who I am. PTSD and separation anxiety are part of who my daughter is. I wouldn't change who they are today. I love them.

Now today we are basically where we were last September. Or even heading to where we could have been in 2012 before I brought my son home. I think: Maybe I shouldn't have taken him in 2012 and perhaps this would all be over now. Yes I know not a nice thought but it's my truth.

A quick overview: My son was diagnosed in 2011 while with his dad and paternal grandmother. He came to live with me in 2012 when things got to bad there. We did really good for a year or two. Seriously he was hospitalized once? I think whereas he averaged every 4-6 months before that. Last year in September things went south and he ended up with his grandmother. October had a bad break and I went to get him and bring him home again.

Now he is trying to buy a plane ticket back to his grandmother.

All the what ifs in the world can't change were we are right now.

So if I could go back and not have taken him in 2012 would I? I would do it again. If I hadn't and things ended then I would feel guilty for not being there as a parent and trying to help. Now I have been there and I have done everything that I feel is best for him and his future.

I do now feel like I have been the best parent that I can be to both of my children regardless of what the future holds for them or me.

This is going to sound harsh however I'm not going to apologize because this is my truth. As long as my son's grandmother is there to... hmm... do what she does, then I can't help my son. We just go in circles. He is not getting better and my resources, mental and physical, are getting used up. Except for my own personal growth there is nothing to show for it. I guess I shouldn't say that. I now know what he is capable of which is so much more. I have seen the brightness that is my son. I have watched him take steps to a future where he would be happy. Not psychotic addiction induced happy but true happiness where he was ok inside.

Now he is taking steps that in my opinion will only give everyone nothing but pain. You might ask how can I allow that to happen?

By letting go.

If I could change anything, I would not. I wouldn't take away my son's schizophrenia or even his addiction just as I wouldn't take away my own. My son's journey is his own as are those connected to him.

Am I saddened by it? Absolutely as I can't see any good coming from it and I'm sincerely hoping it doesn't end in news coverage (not sure if I'm being funny or sincere)... But I'm getting ahead of myself. He isn't on the plane yet.

When my son wants to be a part of my journey to a better life... Oh I hope it happens. Or I guess when I'm the only one left...

There is always hope, right?

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Monday, July 27, 2015

Mocktails and an empty nest

Yesterday I tried making a mocktail, a non-alcoholic version of a typically alcoholic beverage. Of course in my typical fashion of not thinking ahead and just going with an idea, I had no ice... Still hubby and I enjoyed a virgin pina-colada. There is now an ice cube tray in the freezer :)

It's been awhile since hubby and I went alcohol free. It's certainly a different life style. One that can have an impact even though you don't realize it. There is no going for a drink with the boys after work. No hanging out to have a beer. No weekend cocktails and cards. But see that is where I am trying to make the change. Yes we can have weekend mocktails and we can enjoy them in the backyard and we can try to learn to do the things that we did while drinking, sober.

I can't say I particularly enjoyed playing darts but I played. My hubby and his brother enjoyed playing... or they enjoyed drinking with something to do while doing it ;). I want us to enjoy playing darts. I want summer evenings in the backyard.

I noticed something one day last week when hubby and I sat down for dinner. We have been together for almost 5 years yet we have had little time with just the 2 of us. There is usually someone else there or even if they aren't right there, around. Now it's just us. It's a good thing. Not that I'm expecting it to last forever.

I did go see my doctor last Monday. I totally forgot to ask for blood work to be done or to discuss my weight. I did weigh myself while there and I'm not losing anymore, in fact, I'm slowly gaining so I will see how it goes now that some other things are back on track. I got my Venlafaxine refilled. I'm back on my tinctures for my menopause. I am now quitting smoking with just the lozenges once or twice a day. Every time I put on a patch, even the lowest dosage, all if it came flooding back. Ears ringing, dizziness, heart pounding... My doctor said it certainly sounded like the patch was causing it and that if I find wearing it too much then I can't use them. Like I told hubby last night, I guess I had better make this time the last time quitting as I'm running out of options on quit-smoking aids.

The dizziness is still there. Not sure what is causing it. I'm wondering if I'm not eating enough. It's not nearly as bad as it was. Part of it could be being back on my medication and readjusting. I will give it some time. I have to make a follow up appointment before I can get my antidepressants refilled so if I'm still experiencing dizziness etc than I will request some blood work and my female exam.

Work is going good. I worked this Sunday as my boss wanted to see if we would get a good response. I did contact those who asked to be called on Sunday or people that I was having trouble getting a hold of during the week due to working. I haven't gotten paid yet which I'm hoping will happen soon.

Last Monday my son called to tell me that he contacted disability and it was too late for them to adjust this payment so the normal room and board amount would come to me and that I owe him back half of it. I owe him... So yeah... I usually put that payment towards half of the rent.

My son has called here and there. Every time to ask for something. Can we go camping (he is supposed to be paying for this). Can I take him to the grocery store for treats. Can I loan him money for cigarettes and take it out of the money I owe him. He already owes me for a carton of smokes. Yesterday he called saying he really wanted a cigarette. I don't smoke anymore so no sympathy from me for that.

In fact I told him that I'm not going to feel sorry for him. He's getting enough of that already. Whenever I point out to him why he is where he is, he ends the call. That isn't schizophrenia. He knows what happened and doesn't want to take responsibility for his choices. This is the closest he has come to being held responsible.

As always.. what to do... I don't know. I can buy him things now and by the time I get the payment there will be little money left to give him. IF he is getting a plane ticket...

Amazing sometimes how little some things change. He won't accept the right kind of help here if he has the opportunity to run away again. I guess time will tell what is happening there because I don't know what his plans are.

Today I'm planning to try a recipe for granola bars. I'm hoping to find a healthier snack for hubby at work. I might also try finding a recipe I can work with for a multi-grain bread.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Monday, July 20, 2015

Third time's a charm?

As you know I quit smoking when I started using the nicotine patch a month ago. This is the third time I'm quitting smoking with the patch. I did succeed the other two times and was quit for 6 and 8 months each time. Quitting doesn't seem to be my issue. Now staying quit on the other hand ;).


This time... Just wow this hasn't been fun. The patches come in stages depending on how much you smoke. I already knew from past experience that starting with step 1 (21 mg patch) was too much nicotine for me. I also know to take the patch off before bed regardless of what the instructions say. I have always wondered what they are thinking. No one smokes in their sleep (unless you sleep walk) so why have nicotine coursing through your system when trying to quit and while sleeping. I wonder how many people don't even complete the program due to how bad the bad dreams are...

I start with step 2 (14 mg patch) and generally do each step a little longer since I cut out the first step. Step 2 is for less then 10 cigarettes a day. Nothing seems to take into consideration whether the person smokes lights, ultra-lights or in my case super-slims. Really skinny cigarettes.

By the end of last week even I was starting to get concerned. I came pretty close to heading to the hospital's emergency department over the weekend. Hubby came pretty close to taking me. There have been changes to several different things so I wasn't sure what was causing what or if it was all just bad timing of everything together.

I didn't get my Venlafaxine prescription renewed. Yes I know, not very smart of me. I did try however my doctor needs to see me first since I upped it from 37.5 to 75 mg. I'm still not sure if I want to get it renewed or not. I only wanted them for some short-term help until I was able to get started in counselling and hopefully get myself re-centered again. Sadly it seems that I may not be able to make it through a weekend without them though.

I got my menstrual cycle 2 weeks early. Yup fun! I'm already struggling to get enough iron so that I'm not anemic. Throw an extra period in there and I was expecting to feel light-headed. Also I had stopped taking one of my tinctures that I use to keep my menopausal symptoms in check and my cycles regular.

I haven't had a cigarette since June 20.

I think I was handling things not bad. Still by Friday I was getting concerned. I was so light-headed and nauseous. After years of cycle issues I'm used to being light-headed during my menstrual cycles. This however was over the top. Just sitting while I was working was hard as I was constantly on the verge of fainting. I wanted to vomit. I was cold sweats. I had started getting cold sweats at night too which I figured was the beginning of hot flashes again...

Thinking what I was experiencing was mostly cycle related and/or iron, then I doubled up on my iron supplement. Needless to say that didn't help since it wasn't the issue. Then there is the side affects of taking too much iron ;). I think that is evening itself out today though.

Holy cravings... Not for cigarettes. Salt and sugar. Banana splits, waffles, ice cream, whipped cream, syrup, potato chips and oh my gosh thirsty. I was experiencing an over-dose of nicotine. As a smoker and recovered addict I know what it feels like to smoke too much. This was... I don't ever want to experience that again.

This will be the 3rd day of no patch. Yesterday morning I put one on for about 45 minutes. The day before I had one on for maybe a couple of hours. I had to take them off. Within 20 minutes of putting them on I was dizzy, nauseous and my heart rate was going through the roof. It felt like I was running while sitting still. It was like I was on a serious high without the good parts. Breathing was a chore at times.

On a side note. Perhaps the experience can give me a little more insight into what my son can sometimes experience.

That's when I started putting it together. When I realized that I haven't physically craved a cigarette for a while now. I had gone days without wanting a Lozenge. There was so much nicotine in my system that even the habit itself wasn't making itself known.

I spoke to the pharmacist and he said it was a good thing that I was ready for step 3 (7 mg patch) so quickly. At least that was reassuring, I guess. Feeling like I needed to be in the ER wasn't.

Today I can feel it. I want a cigarette. I'm afraid to put on a patch though. I will see how I react to a lozenge first. I'm still light-headed. No where near where I was though. Thank goodness. I wake up feeling ok since I have gone all night with no nicotine and my system can start flushing it out. Caffeine... I'm noticing that drinking coffee is not helping as it's another stimulant that is triggering the nicotine affect.

All the physical stuff... It was the emotional or should I say IS the emotional that I'm struggling to get under control. Since I have never come off of antidepressants before and certainly not with all this other crap going on, I have no experience to compare it to. Yesterday I was to the point of, I don't know what. Hubby was 'helping' me with cleaning the floors. The way that ADHD, over-worried hubbies can help. By making everything worse :). I couldn't handle it. I couldn't handle his ADHD thinking. I couldn't handle his attitude or inability to cope with me not being able to handle him. I hit him with a pillow. Trust me I wanted to do more... I wanted/needed him to stop. Just stop.

I'm a hormonal mess it seems. I have been on the verge of tears since yesterday morning. Now I think this is due to coming off the Venlafaxine. Not only do I want to cry at the sappy parts in movies, I want to cry at the thought of the sappy parts that I know are coming. Haha! Parts that I don't normally find sappy...

I'm back on my tinctures for menopause. I think my bleeding is finally stopping. Sorry guys... But honestly. Why can't our bodies just make a decision. Off or on. I don't even care which but 'spotting' is a complete joke.

Before I forget. A shout-out to my followers who have shown me support. I can't say how much I appreciate it. I don't have high expectations when it comes to family or anyone's ability to care... I will just leave that there. I blog and share because it helps me and hopefully helps others to not feel alone. So when I end up not feeling alone because of my followers responses and support. Yup, I'm a hormonal mess! Thank you and I see you! (We watched Avatar last night)



I missed my son's call yesterday. Because of work I sometimes put my phone on vibrate. I have a new work number now but the people I have previously contacted have my personal number. So I didn't know that he had called until last night.

I did see him on Friday. Hubby and I dropped him off a carton of smokes that he was supposed to call me and learn how to transfer me the money for them. Yes I know... I really wasn't expecting that to happen. I butted heads with privacy laws again. We can't tell you if he is here... We can't help you because we love to quote privacy laws instead of using common sense... Honestly I found myself insisting that there is a release that can be signed and that I'm pretty sure privacy laws haven't changed in the past 6 months. I had to insist because for whatever reason they didn't want to be bothered to reach over and grab a piece of paper that apparently didn't exist until I insisted. Then magically it appeared and my son was able to sign a release that let them acknowledge that he existed there when I called or showed up to drop off things he requested.

Sorry... It's just such a bullshit system and it doesn't help anyone. They certainly weren't helping my son. So who were they helping? Good question!

My son had called wanting smokes and some other items. Honestly I think he just wanted to come home and see if the alcohol was still here. He wanted some cloths. I checked his room and he took the cloths that he likes to wear. He already had tons of socks and underwear. His favorite shirts. Shorts and several pairs of pants. I did take him his favorite hoodie and some other things like chargers and his ipod etc.

Since the shelter pulled their privacy crap we couldn't even wait on the shelter's property to see if my son was going to come out for a smoke. They wouldn't take the items we brought. So we sat in the car for like 45 minutes, on the street. Then we drove to the closest mini-mart since I knew my son was buying cigarettes. I guess he saw us at some point so just as I figured was going to happen. He called me as we were getting back on the highway heading home. We turned around... I went inside with him to make sure the release was signed.

I asked him if he was taking his pills and he said yes. I asked him what he was doing. Just sitting outside smoking. So I clarified that I meant in the future. What are his plans. Well he doesn't want to have a place on his own out here in Ontario. He doesn't want to have a place on his own anywhere. The difference is that here with me being an addict/alcoholic isn't easy. In British Columbia it will be easy as who is going to try and stop him from throwing his life away? He knows that talk about him getting his own place out there is just that, talk. He has no intentions of doing it. He can't see past his addiction right now. And I seem to be the only one who thinks he is capable of doing that.

According to him he plans on buying a ticket with his disability payment. $98 isn't going to buy him a plane ticket. I'm certainly not helping him throw his life away. I told him again that he needs to go into rehab. He needs to be in a long-term treatment facility to help him. At least here that option is a distinct possibility and could happen rather quickly if he would take that step.

It's all second guessing on my part since I haven't heard from anyone on what their plans or intentions are.

I won't say how I know however I do know that he went to the liquor store on Friday for a bottle. I'm guessing he hasn't gotten caught or drank it all to make sure he didn't get caught. Alcohol... harmless right? Let him have it, right? *shakes head*

For now it's one day a time.

I do plan on making a doctor's appointment for myself and getting some blood work done. I want to make sure that the weight I have lost isn't as bad as everyone else seems to think it is. They may be right. I noticed on the weekend that I felt my ribs. I don't think I have been this thin since I was addicted so I should follow up and make sure it's nothing serious. I have been trying hard I guess to not acknowledge that there could be something wrong. The thought of me not being capable of taking care of things... It's a scary thought.

I'm off to play my Facebook games before work. I hope everyone had a good weekend and *finger's crossed* and a good week.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Friday, July 17, 2015

Ashes! Ashes! We all fall down.

I don't have a lot of time before I start work however I felt like doing a quick blog post.

I think I have referenced the above nursery rhyme before. Sadly it's one of those cycles that we/I seem to keep getting caught in. I keep saying that I don't want to play this game anymore. It seems the only way I can make that happen is to quite literally remove myself or as I did on Wednesday, remove my son.

He did end up going to the liquor store and got 4 bottles of alcohol. A nice variety: vodka, southern comfort, fireball whiskey and sour puss liquor. I had no idea. I began to get an idea however when I asked him to clean up his mess in the kitchen and got threatened with being hit and he tossed his candy all over the kitchen counter and floor. A little while later I looked into the back yard and he was lying there with an almost empty bottle of sour suss beside him. That got tossed right away. He didn't seem concerned about it. Why would he be? He had 3 more bottles to go.

I sat at my desk and asked myself if I was prepared and willing to do what I wanted to do next. Yes. I called the police. Like I explained to the lady on the phone, I really didn't feel like I had many, if any, options left. At the rate he was going there was a big chance I would be calling the police soon if not that day anyways and the outcome probably wouldn't have been very pretty.

They attended. One of them was periodically an idiot in my opinion. When I told him that there was open alcohol stashed on the grounds he didn't seem that interested in doing anything about it. Or should I say motivated to actually walk his ass anywhere to find it. There was kids around playing. I let him know that if a kid got into it then it was on his head. I still don't get how it's not his job to enforce the law of no open alcohol in public or drinking in public. But hey...

My son at this point was quit intoxicated which was very clear by his face and speech. After I removed the sour puss, I'm guessing he went for the vodka since I still haven't found that bottle. He insisted on lying to me and the police when asked about the alcohol. By the way, I have the liquor store receipt from that morning which I found stashed behind his TV stand.

I stood there, looking at the officers, managing to hold my cool and my emotions, while they asked me what it is that I wanted them to do. Did I want him removed from the home. Since he wasn't at that moment being violent... Gotta love the system! Can't prevent violence only get involved once it happens. Call them back if he does get violent with me.

Of course my son is saying there is no more alcohol which was a lie. He is saying he is done drinking for now. I'm standing there... Thinking to myself I have done what I can do. I have asked anyone that I could think of to ask for advise on what I was supposed to do and handle this type of situation. It was up to me if I wanted to call in the police. Well I took that step and I stood behind it. I asked them to remove him from the home.

They did. I do believe he got charged a fine of some sort for being intoxicated in public then he was released to the shelter once he was sober enough I guess for them to accept him.

Now it's Friday and I have heard from him a couple of times. Asking for a ride to get smokes since he didn't want to spend all of his money on expensive cigarettes. Asking for money for a plane ticket back out to British Columbia. And of course there is the fact that I will owe him money at the end of the month when I receive the room and board portion of his disability payment.

Money, money, money...

I haven't heard from anyone else which tells me a lot. Having been through this as many times as I have been, the quieter it is and the less I'm hearing from people, pretty much tells me what I need to know.

My daughter called me on Wednesday asking what happened. I love her dearly but she can be pretty transparent. She has this way of asking... It's not her asking. I try really hard not to react because none of this is on her. Still it's hard when she wants to get in the middle when she has no idea what is going on or what I have been dealing with. She asked if I was prepared for him going back out there and commented that she guessed she was going to have to get another job. Isn't it awesome that an 19 year old is going to try to financially help take on the responsibility of 2 adults that are older then her.

My only response is for them to do whatever they feel is necessary. Please don't call me for money. I just sent her money because she said she didn't have money for personal hygiene products and cigarettes until pay day. It looks like I have some more boundary setting ahead of me.

Yesterday I had a shower that I actually enjoyed. I didn't even realize until I was in the shower that it's been months since I had a shower and relaxed in it. Always having my guard up, my listening ears on and making sure my purse or anything else of consequence was hopefully in a safe place.

I cleaned up the back yard. I have been avoiding it because my son has been treating it like a garbage can and I was constantly picking up garbage and cleaning up spit etc.

I have been going to bed and leaving my purse in the living room.

There is a part of me that is honestly reveling in the freedom of being able to enjoy and relax in my own home. I can breathe. Hubby and I can spend time in the living room together. We have been going to bed right after dinner lately because it was easier. I can work without worrying about paying attention to what my son was doing or having to stop to clean up his vomit or making sure he wasn't masturbating again out front. What can I say... Yes it feels good.

The mom in me however is make no mistake about it, heart-broken.

I just don't want to fall down anymore.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Wednesday, July 15, 2015

I'm alright.

Two blog posts in one week. Don't you feel lucky? ;)

I was talking to my son's case worker at PACT this morning and she asked me if I was alright then commented that I sound stronger then I ever have. Yes I am alright. As matter of fact I'm good for the first time in a long time.

I had my counselling session yesterday with ADAPT. We discussed my job and how I'm handling and balancing everything with my not smoking, my son, my hubby etc. I'm adjusting and settling into a good routine.

My son is a different story. He isn't adjusting. He isn't anything except digging himself deeper into alcohol and therefor schizophrenia.

I found out Monday morning that he had called dial-a-bottle to deliver his alcohol. He did this last Thursday. So he was drinking alcohol in his room, hiding it from me, knowing that I had no clue because he hadn't gone anywhere on his bike. He got 3 bottles, which was gone by Monday morning. He also tried to call them early Monday morning.

He no longer has cell phone service. It's his phone but the service I was paying for. He came to me asking for it back that he wanted to call his Nana. I offered him my phone that he can use that whenever he wants. Did he want my phone to call her? His answer was no. Of course not. He really didn't want it for that reason. He wanted it back to call dial-a-bottle.

I'm not sure why he hasn't gone to the liquor store on his bike yet. He has had money since Monday. He received a direct deposit from the government for around $300. He also discovered money from them on Thursday that he didn't tell me about since it was used for alcohol that he was hiding from me. I'm questioning if the liquor store has refused to serve him. He says no.

I tried talking to him this morning about him going to an addiction treatment center. He doesn't have a problem and it's not impacting his life... The only problem is my problem. My problem is with all my house rules being broken and not being shown any respect.

I called his case worker to find out where his applications for housing are at.

As time goes by and reach new steps in acceptance than I'm more and more reaching a point where I have to acknowledge that I can't help someone who doesn't want to help themselves. The more I give the more I'm cushioning him from the consequences of his own actions.

However I guess what it really boils down to is where I'm at. I'm in counselling for myself. I have quit smoking. I am now working. Hubby just quit smoking too. He also started a new medication to help with some side affects from his other medications. We are trying to build a life. A good life. A healthy life.

I know my boundaries and I know what is good for me and what isn't. I keep letting them slip and get pushed aside because he is my son and I love him. As I act from a place of love, he acts from a place of addiction. Of self-centered I want and I should be able to have because I want...

Okay...

I'm ready for the next step. I'm ready to accept the consequences of the choices I want to make for my life because I want a better life and I deserve a better life. If my son wants the life that he is choosing then all I can say at this point is ok. Go and get it.

I thought I had more time to write this blog however someone regarding work called and now I have to start work in 10 minutes.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Sunday, July 12, 2015

A right of passage

Thought I would give a quick update...

Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!

On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).

They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...

He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.

We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.

The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.

He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.

As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).

The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.

So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!

I guess that wasn't a quick update after all. :)

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Sunday, July 5, 2015

I have a job! I think... They are back!

It feels like forever since I last blogged and it's only been a week. What a week. I think for the first time in years I can say that I'm glad it's Sunday! So unless you're my daughter, my husband or an emergency, chances are I will not be answering my phone today.

Hubby has been teasing me because I'm usually the one commenting that we go to bed too early and since Wednesday I have been asking him to come to bed anytime after 7. My insomnia certainly hasn't been an issue lately. ;) I've been exhausted. A good exhausted though.

I was put in touch with someone regarding a work from home opportunity. On June 29 I received a call asking if I was available for training that night. Yes! The job itself is fairly easy. It's pre-screening callers to see if they qualify. I had heard the term inside sales before however I wasn't sure exactly what it meant. Now I know. Well at least from this company's perspective. There have been a couple of bumpy spots as I try to learn the system and what is expected of me. Still not completely sure of what is expected of me time wise but that's ok. I still have tons of questions that haven't been answered. Hopefully in time the answers will come. As I learn more about how it works the more confident I feel doing the work. The reason I say I think I have a job is because it hasn't really been confirmed. I guess we could call this my probationary period.

For the past week I have been mentally all in, trying to learn the ropes. I think I'm getting the hang of it pretty good. I know that I can be a little slow getting started. Ask my old bosses! ;) However once I have something, you can usually count on me to carry through and go the extra mile. Tell me what you need and I will do my best to accommodate. If you don't tell me... Well I will give you what I think you need and hope for the best. Which is what I'm currently doing.

So yes bed looks and feels really good now! It feels good to go to bed tired. A good tired. Not like when I go to bed exhausted from butting heads, with no end in sight, with schizophrenia, addiction and all it entails. That exhaustion is grueling and wearing on the soul.

I'm afraid I have nothing good to report on my son. His Invega still has not been upped. His case worker dropped off his weekly medication pack on Friday stating that his nurse has not been in so nothing has been done. Awesome!

Tuesday he got his disability money. Of course that meant a trip to the liquor store for vodka. Hubby did take him to buy cigarettes first. He got 2 cartons. One of them is almost gone. He has missed taking his medications twice. Once he argued with me that he had taken them, that I had given him his medications twice that night. Wednesday he wouldn't take them because of the alcohol he had drank. Saying it would make him sick. I don't know if he still has alcohol left. He bought two bottles and so far I have only seen one bottle in the garbage. He hasn't been out to his 'secret spot' that I'm aware of for the past two days. I don't know if it's because he has forgotten or just doesn't want to. Or the ever present possibility that he has snuck it into his room.

I did give him back the internet however I let him know that it's dependent on me finding out that he is smoking in his room or not. I think he is a little bit however not like he was. I know this because I'm hearing him come in and out all hours of the night.

Yesterday he stressed me out. I was working and he was sitting out front. Our front porch is part of one of the court yards where all the kids play and hang out. I happened to look out... Thank goodness he was wrapped in a blanket but what he was doing was obvious. I quickly went out and stopped or interrupted him and told him to get inside. Of course his answer was no that he was done now. Thankfully there was no kids out there when I went out. I'm really hoping that there wasn't before hand. :( Yes I freaked a little bit. But only a little bit. I let him know that that was not acceptable and that there are children playing and if a parent or child sees him doing that that they can call the police for doing indecent acts in public. I sincerely hope that no one else saw. Mental illness or not I don't think that having schizophrenia excuses that type of behavior and honestly I think his drinking is contributing to this behavior more then psychosis.

Speaking of that. Lately that is another thing that he has been trying to do. Blame schizophrenia. I have schizophrenia so it's not my fault that I'm smoking in my room. It's schizophrenia's fault that I kicked your bedroom door. Take me for a ride as it would really help my psychosis... Even he couldn't keep a straight face for long when I responded with: Good one.

It seems he kicked my bedroom door when I thought he punched it the second time. No memory lapses here. He remembers, just feels justified in doing it. Gucci our poor cat is now freaked out by him. She totally freaked when he did this. I have never seen her act like that. She hid behind the sofa for most of the night that night. Now even if she is relaxing on my bed with me and she hears him on the steps, she tenses and is ready to flee. She won't eat if he is around. I have noticed that she isn't sleeping with me the same. A couple of times I have found her sleeping on my chair downstairs which is new. Perhaps she feels trapped upstairs when he is up there.

The fruit flies are back! Yippee! I haven't been in my son's room much over the past week. After I cleaned it the last time I have pretty much avoided it. I know he is making a mess in there and honestly I just couldn't have cared a less. It seems pointless sometimes to even try and keep it neat or clean. I should have clued in after the last time. But no... I have been noticing them coming back and shaking my head as to why no matter how much I'm keeping the kitchen clean they are still there and in the living room. Last night Michael asked me to scratch his back so I went into his room and moved his garbage can. Yup you guessed it. Fruit flies.

I guess I have some caregiver chores to do today. Hubby had to work today so I'm just enjoying my quiet morning and my Facebook games. Once my son gets up I will 'try' to get him to help me clean his room. Even if that only means him holding the garbage bag ;). I still haven't gotten him in the shower so today is shower day for both of us since I need one too. I noticed my armpits... hmmm yeah. They  never smell. I guess I have been stressing while learning this job more then I thought.

Time for a fresh cup of coffee. Oh yeah. I'm still quit smoking! There was a couple of iffy moments over the past week where I really wanted one but I didn't. I think this job is helping some. It's not part of my routine to smoke while doing it which seems to be helping. Hours will pass where I don't even think about it. When the urge hits I do have nicotine lozenges.

I hope everyone here in Canada enjoyed their July 1st, Canada Day celebrations and that our neighbors to the south in the US enjoyed their July 4th, Independence Day celebrations.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.